About Paul Underhill

Paul Underhill has Cystic Fibrosis, the most common fatal genetic disease affecting Canadian children and young adults. At 42 years old, he is one of the “lucky” ones. Most of the friends with CF whom Paul has met did not live to see their 30th birthday.

This site was built last year when Paul was flown by air ambulance to Toronto to wait for a double-lung transplant. After being in Toronto for just nine days, he received his transplant on Good Friday, April 22 of 2011. The blog was written in the early days by his sister and wife, and later by Paul. It chronicles the incredible healing journey, with all the highs and lows, and has been kept up as a resource for anyone awaiting transplant.

Paul is incredibly grateful for all the support he received from friends, family, health care providers and even total strangers, and encourages you to register for organ donation if you haven’t already done so.

BC resident’s can check their register and/or ensure they are registered online at http://www.transplant.bc.ca

Comments

  • Hello Paul,
    I heard about you through my cousin Max Plaxton. I love your story and love Rumble. My brother, Michael, has CF as well and I have encouraged him to contact you. I think it would be amazing for him to switch from Ensure to Rumble. Everything about it is so much better than Ensure which is full of sugar and chemicals. It would be awesome if we could eventually have the CF foundation recognize this and give it to people with Cf instead of or as well as Ensure. I am not sure how to proceed with this, but I am going to start researching. I was thinking in the mean time……………do you need any models for your advertising? Maybe my brother could trade modeling for Rumble? I am just throwing it out there. Hope all is well. Thank you for everything that you have done. Just so you know, I have always been an organ donor. :)
    Sincerely,
    Allison Timmermans

    Allison TimmermansApril 11, 2013
  • Hi Allison,

    Sorry I didn’t see this earlier! Love to chat more – please email me through our webpage.

    Cheers!

    Paul

    PaulApril 18, 2013
  • I also have CF. It is hard to believe that you could live to be 42 with CF without the transplant. I am 23 years old male and breathing is hard for me, plus liver problems and other problems. You are amazing and I take my hat off to you. How are you doing with the new lungs ? Where did you have your surgery ? I live in NC so I go to Duke Hospital and waiting for lungs but I am about maybe a year or so away. Am I scared ? You better believe it. It was so good to read about you and your amazing life that it really gave me a good uplift. I wish you all the luck in the world and my prayers are with you. Please keep us in touch with how you are doing. My friend at 18 had a lung transplant and ayear later it had to be repeated. Soon after the second go around she passed away. Hurt me so bad. I was so much in love with her. Keep us in touch.
    Frankie Wise

    Frankie WiseJune 1, 2013
    • Hi Frankie!

      I am very lucky to live to 42, as I was diagnosed young from symptoms. Even more blessed to receive the transplant!

      I am doing extremely well, the best physical shape of my adult life actually :)

      I was scared as well when I was waiting – scared that I wouldn’t receive new lungs in time. And it was close. I too know some who have succumbed after a year or two post operation, but also many who are doing well 12, 17 and even 23 years post double-lung transplant so there is good reason to hope, and care gets better each year. It’s not a cure, but the next best thing until we find one.

      So fa r it’s two years later and just yesterday I ‘competed’ (participated might be more accurate!) in a Time Trial race here in Victoria.

      I have heard wonderful things about Duke, so I am confident you are in the right place.

      Best wishes for a healthy transition and a speedy recover. I hope you are breathing easy soon!

      Cheers,

      Paul

      PaulJune 2, 2013
  • Hi Paul!!
    You look amazing!
    I hope you remember me- your handy dandy respiratory therapist at the Jubilee! I had no idea just how serious you were about this drink! I remember you telling me stories of the different recipes you were trying out to come up with some concoction that not only tasted good (better than that ensure crap) but was good for you. Good to see you’ve done SO well post transplant!
    I have a question for you and your rumble team regarding marketing. I’m not sure of the best way to contact you. Could you drop me a line sometime?
    Thanks!

    Jade Shultis

    Jade ShultisJune 25, 2013
  • Hi Paul, I just finished watching Dragon’s Den and saw your presentation and was totally awed by your touching story. I wish you a long healthy life – you are truly an inspiration!!

    My husband’s cousin son was born with CF and is now 13 years of age. He looks so frail and my understanding is even though he eats quite a bit, he isn’t putting on weight. Do you think if I purchase your product, it can help him? He lives in Italy?

    I am interested to know where I can buy your product. I live in Hamilton Ontario.

    Thank you

    PinaDecember 4, 2013

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